I believe that nothing is left to chance, that coincidences don’t exist. I believe in God and wine (in that order). I believe that I have been blessed more richly than I deserve. I believe that life is beautiful, even when it is hard. I believe in going to bed with a grateful heart, and waking up the same way.
I’m a wife, a teacher, and a mother. I am passionate about human rights, civil rights, and particularly disability rights. For many years I believed my life’s calling was to teach special education. And then my daughter was born. I learned quickly how much I have still to learn about life, and that translated directly to my teaching, to how I relate to parents and families. My daughter opened up my world, restored my faith, changed my heart. And then on Christmas Day 2011, my life changed again, in a bigger way than I could ever have imagined. My son was born, 3 weeks early, with a grand surprise–2 actually. He has Down syndrome, as well as a congenital birth defect requiring multiple surgeries to repair.
I didn’t waste a minute feeling disappointed about his diagnosis. I was worried about his medical issues, scared about what the future would hold, but never disappointed that he has Down syndrome. He, along with his sister, are the light of my life. They are my greatest loves, my most profound blessings. My husband and I jumped in with both feet, hanging on to each other and our faith as we embark on this new and beautiful adventure.
It has now become my mission to share our journey so the world can see just how “normal” life with Down syndrome really is. My hope is that by sharing snippets of my family, my children, and my marriage, we can raise awareness and show the world that all life is precious and life with Down syndrome is worth living!
But wait–this isn’t just about Down syndrome. Sure, it is part of our life–a big part–but our family is much more than a diagnosis! So, welcome! And I hope you enjoy our family as much as I do!